At the moment, pain is ever present, along with spasms whilst walking or using the muscles in general.

Both in legs and arm.

Typing and writing is difficult and painful.

As it is sitting for a long period of time.

Brain fog and fatigue take over my “good leg day” so, if it isn’t something, it’s something else.

I have difficulties holding objects (from as little as a mug), lifting them (muscle weakness) or moving them.

I can walk but with conditions.

I would like to make it clear that there is nothing wrong with my legs per-se.

It’s the connection that is failing. So although I’ve always been pretty flexible and still am, I can move, but some movements I better avoid since very painful. Like open my hips like a book. You know? Like sitting crossed legs…

Spasms and pain, make it difficult to walk normally, so my walking movement starts from the knee, having me actually walking like a little Geisha with no hurry 😅.

I also have to stop every so often if I wanna get more resistance to continue.

The pace has to be deliberately slow.

If I sit for long periods, my body feels like going rock solid, and getting up will be painful and the ability to walk compromise.

So, I have to stand and move at regular intervals.

Which makes travelling and activities like cinemas painful.

In conclusion: standing hurts, sitting hurts, walking hurts.